Friday, November 30, 2007

COPD Patients And Family Members, Let Your Voices Be Heard!

Dear Friend,

In 2004, the National Emphysema/COPD Association (NECA), previously known as the COPD Research Network, conducted the largest survey in the United States of persons with chronic lung disease, including chronic bronchitis, chronic obstructive pulmonary disease (COPD) and emphysema. The survey results provided valuable insights regarding the needs of the COPD community to physicians and other health care providers.

We are now very excited to begin our follow up survey in conjunction with Innovative Health Solutions, Corp., a strategic healthcare analysis and research consulting firm.

Below is a link to the NECA website where you will be able to access and take one of two surveys. One survey is for the person with COPD. The other survey is for the individual who cares about the person with COPD and provides valuable assistance to them (for example, a spouse, a child or other close relative). Your household may complete either or both surveys. Each survey should be completed independently, without input from anyone else, within the next week to ten days.

To take the surveys, go to: www.necaweb.org

Many of you participated in the previous survey and we thank you and look forward to your participation in this survey as well. It is extremely important to all of us in the COPD community. All answers will be treated as strictly confidential. No personal identifying information will be disclosed.

If you have any questions about the survey please send an email to survey@necaweb.org
or call 1-866-340-NECA (6322).

Thank You for your participation.

Thursday, November 29, 2007

Thursday Thirteen - The COPD Christmas Wish List


Well, I've done the Thursday Thirteen on my Grammy blog and on my journal blog - it's time to wander over to where I really work and add a bit of thirteening here too.

The Thursday Thirteen - Thirteen Gifts Your COPD Person Would Love For Christmas!

This Christmas gift "wish list" was compiled last year with the help of the super members of the forum Sharing COPD Information

It's certainly true that people with COPD are in most respects people just like you or me.
(hey...wait a minute... "they" are me! And quite possibly you. Or someone you know.)

We're still the same people we always were and the gifts that we've received in the past, we'll probably still enjoy now and in the future.

But there are some changes that are unique to the COPD lifestyle. That's where this "wish list" comes in. If we could ask Santa to bring a few things, here's what they might be:

1. an oximeter

2. good books/movies, especially happy/humorous ones

3. comfortable walking shoes & insoles

4. warm jacket with pockets
(a down jacket or similar outerwear is much preferred to the synthetics for warmth, especially for those of us who don't move too fast when we're outside- even though they are a bit more pricey)

5. rolling backpack/suitcase

6. gift certificate for favorite restaurant (especially ones that have take-out)

7. one frozen lobster

8. a bus tour – the kind that usually feature some sort of concert or show,
then lunch and perhaps a few other stops before heading home

9. a nice, soft scarf that can be worn over your mouth and nose when outside

10. a very good office armchair with all direction rollers.

11. a trip to the mall for 2 hours with door to door service as well as someone willing to carry packages as I shop.

12. take my car to the car wash (or do it yourself) for a wash, wax and general cleaning

13. a fluffy bathrobe

We have a lot of great ideas on that forum, so here's nine more:

1. help running errands for 4 hours

2. a warm, washable lightweight vest

3. comfortable, padded barstool with seatback to be able to sit comfortable at the kitchen counter while preparing meals

4. door to door service for two-three hour outings

5. an emergency dialer with speaker phone and panic button (push the button you wear around your neck & the base will automatically call the numbers you programmed until someone answers; they can activate the speakerphone & talk to you--NO monthly service fees)

6. a pre-paid cell phone for emergencies

7. a MedicAlert (or similar) jewelry & service

8. housekeeping service for one day

9. a portable voice recorder to record the questions & doc's answers at appointments to listen to again at home


For some more good ideas, I found a catalog that I like at
www.wellhaven.com
They have garden tools, mobility accessories, music collections-
I really like the long handled body lotion applicator for your back or legs....

another catalog- www.ActiveForever.com is more medically oriented and not as much fun, but they do carry almost everything you might need to assist you with the "activities of daily living" at a pretty good price
(no lotion applicator though)

In the sidebar to your right, you'll find the link to the Problem Solvers shop. There's lots of stuff to drool over in their catalog!

If you can think of items to add to our wish list, please leave a comment and I'll be sure to let Santa know.

Wednesday, November 28, 2007

COPD And Stress - More On A Less Stress Holiday Season



This week's issue of the COPD International Newsletter brings Featured Articles - Energy-Saving Holiday Tips

TIPS FOR ENJOYING HOLIDAYS WITHOUT GETTING BREATHLESS
The holidays are a special time of the year, however they can very stressful. There's so much to do - shop for gifts, put up decorations, put up and decorate a Christmas tree, attend Christmas parties and other events, wrap presents and visit family. The holidays are tough for even the healthiest people.

When you have a lung disease, the holidays can wear your down, damper your holiday spirit and aggravate your lung disease. Here are a few tips to help you enjoy the holidays. See Tips:
http://lungdiseases.about.com/od/generalinformation1/qt/holiday_tips.htm

TAKE A DEEP BREATH AND RELAX
Stress can be hiding around every corner this season. Learn tips to relax so you can gracefully deal with life's curveballs. See Tips:
http://www.aarp.org/health/staying_healthy/stress/a2003-03-11-taking
time.html


THE HOLIDAYS: 12 TIPS FOR COPING
Stress and depression can ruin your holidays and hurt your health. Being realistic, planning ahead and seeking support can help ward off stress and depression. See Tips:
http://www.mayoclinic.com/health/stress/MH00030

COPING WITH THE HOLIDAY BLUES
Besides keeping busy and accepting loss, there are other things a person can do to keep away from the holiday blues. Hanging out with friends or family members which don't have sad or negative emotions attached to them may be helpful. If not in the real world, then you may also consider spending more time online in a support group or chat area, which is to your liking. Here are more tips on how to chase away the holiday blues. See Tips:
http://psychcentral.com/archives/holiday_coping.htm

TIPS TO EASE THE SHOPPING FRENZY
Here are a few suggestions on how to handle Christmas shopping without having to catch your breath or get stressed to the max.

-- Mail-order catalogues
-- Home shopping networks
-- Online stores
-- E-mail greeting cards
-- Shopping and delivery services
-- Gift certificates

GETTING OUT AND ABOUT
For many of us, there is no reason for us to stay housebound. The holidays provide the perfect reason to get out and about. Visiting friends, shopping, spending time with relatives will do wonders at helping us enjoy a better quality of life. For guidance on portable oxygen equipment, most of which can be provided by your local oxygen provider, go to: http://www.portableoxygen.org

And in the About.com Health Newsletter Elizabeth Scott, About.com's Guide to Stress, has put together a series of articles to help you simplify the holiday season. So, follow her advice, and in a few weeks, when it's all over, you won't feel the sudden urge to take a long, deep nap.

In the Spotlight

Holiday Shopping Made Easier
Well, my answer to this is two words: online shopping. I love it. But it's not for everyone, so Elizabeth has a few other handy tips as well.
- Stress Guide Elizabeth Scott

Holiday Cooking Made Easier
A good nugget of advice: Be willing to try something new. For example, it's perfectly OK to order your entire holiday dinner from a local restaurant. My family typically does this, with a little local South Texas flavor: We pre-order dozens of tamales.

Holiday Cards Made Easier
Written by two very funny people, my husband's parents' annual holiday newsletter is one of the best reads of the year. And every year they threaten that it's the "last one they'll ever write." Eventually, when they make good on that threat, I'll have to get over it, and keep in mind how stressful it is for them.
- Stress Guide Elizabeth Scott

Tuesday, November 27, 2007

COPD And Stress / Not A Healthy Mix - How To Manage Holiday Stress



The Best of Times,
The Worst of Times,
Often the Holidays Aren't All They're Cracked Up To Be...


Here are some articles to help you to enjoy your holidays more,
Or at least to cope with the season a little more comfortably.
This entry is one of the Holiday Pages on my website
COPD And So Much More.
Please plan to visit me there soon!

Beating Holiday Stress
From Web MD this article contains strategies and stress tips for successfully navigating the holiday tides
The strategies?

Strategy: Cut Yourself Some Slack-
With four tips to show you how

Strategy: Eat to stave off tension as well as hunger.
Three tips for calmer, healthier eating

Strategy: Put whatever's stressing you in perspective
With three tips to help you change your outlook

Strategy: Learn how to have more fun with less stuff!
Three final tips

Great article!

from Dr. Phil-
Making the Holidays More Enjoyable
Find out how to bring a little sanity into your holidays.

The American Psychological Association has this article
Coping with Holiday Stress
to help answer these questions-

How Can You Deal With Continuing Family Problems During The Holidays?

Do Financial Pressures Stress People Out to the Point of Ruining the Holiday Spirit?

How Do Time Pressures Affect People Around the Holidays?

How Does a Person Deal With the Holidays When He or She Has Just Experienced A Recent Tragedy, Death or Romantic Break-up?

What Are Some Good Coping Strategies?

At the Mayo Clinic Site-
Stress, Depression and the Holidays:
12 Tips for Coping

The article lists three areas that commonly trigger holiday stress or depression:
Relationships,
Finances
and Physical Demands,
Then gives 12 tips or pre-emptive strategies for handling these areas

From Harvard Medical School
Stress- When Family Fun Is No Fun!
this article talks about how to avoid letting perfectionism spoil the party and how to worry less!

And finally, Oprah's list of Dos and Don'ts for the Season
Family , Gifts, Expectations and Health
Don't let the Holidays Drive You Crazy!!!

Monday, November 26, 2007

Alone For The Holidays?


Back from a Thanksgiving Holiday, time spent with my husband and with my family, I am very aware of just how lucky I am. This was a wonderful holiday. I have had many wonderful holidays. Some of those wonderful holidays I spent alone. Happily alone.
Below is an article I wrote last year for the Holiday Pages on my website COPD And So Much More. If you are facing the holidays alone this year, I hope it will be a help to you.

Alone for the Holidays

Seasonal hype leads us to believe that the only way to achieve holiday happiness is by spending time with family and loved ones. Facing the holidays alone can sometimes make people feel sad and lonesome.

-and please don't think that this is some sort of Susy Sunshine article written by someone who always has a houseful for the holidays, but who is still going to give you advice on how to put on a happy face.

I am very, very blessed in my life now,
I do have family with me,
I even have a child to share Christmas morning with.

But that has not always been the case- far from it.
I have spent holidays alone. Some I spent miserably, most I spent happy, blessed,
alone and well. It can be done.

The truth is that being alone does not have to mean being lonely.
Recognizing that no one else is responsible for making your days merry and bright is the first step to enjoying a stress-free holiday season alone. Try to stay positive and avoid getting into a negative mindset.
Here are some tips that may help.

Focus on the present and think positively.
Think about something you enjoy and do it.
This will help reduce some of your frustration and unhappiness as well as build your confidence and enable you to live in the spirit of the holiday season.

Indulge yourself

Decorate the House
Even if you're the only one who's going to see it, take the time to decorate your home.
Put up a Christmas tree, hang some lights. Send out cards. Make Christmas cookies.
One of the hardest things about spending Christmas alone is the feeling that everyone else is having a great time and you've been excluded.
Make sure you're not excluding yourself.

Plan Something Special
There's nothing worse than hearing everyone else's excitement over the upcoming holidays and having nothing to look forward to yourself. If you haven't got big plans for the next couple of weeks, now is the time to fix that. Plan a treat for yourself, something really special. Not only will it add to your holiday, but it'll give you a great answer to that dreaded question: "So what are you doing for Christmas?"

A lot of new movies come out in December and many theatres are open on Christmas Day, so treat yourself to a show or plan ahead and rent some films you've been wanting to see and watch them on the holiday.

If the weather allows, go outside for a while and enjoy the peace of nature. Or go for a drive and look at holiday lights and decorations.

Eat well.
Hit up that trendy eatery you've been eyeing for a while, or stop by the deli counter at the supermarket and try some interesting ethnic dishes. Buy a great big steak and your favorite bottle of wine and savor both. The holidays are synonymous with good food, so why not enjoy it, even solo?

Get away for awhile.
Even if you go no further than booking a room at the nearest local hotel, play tourist,
enjoy room service, relax and unwind.
Enjoy the peacefulness of a day without obligations.

Stop by the library or neighborhood bookstore and stock up on some great books.

Whatever you enjoy doing, indulge yourself.

Maybe you just don't want to try and enjoy the holidays alone.
There might be ways to solve that problem too!

Extend invitations
Be proactive.
Call up other people who might be on their own and arrange a holiday dinner,
agreeing to split the meal preparation duties. Don't assume that everyone you know
will be busy throughout the holidays. Yours might be just the invitation they're waiting for! Even if they have family commitments, they still might welcome the opportunity to escape and spend some time with you.

Accept invitations
When people ask about your plans, don't create a fictitious family gathering out of embarrassment. Be honest and say you don't have any plans. With any luck,
someone will issue a sincere invitation for you to join them for a holiday meal or special outing.

Go to church or a senior center or other places that offer community activities. If you don't have transportation or you don't drive, call and ask if they can provide you with a ride to holiday services.

Giving gifts or giving of yourself is a big part of the holidays.
Lend a hand to other people who are unable to shop, make a meal or bake cookies. Make some crafts and have them distributed to residents of nursing homes, homeless shelters and so on. This will help you feel the holiday is more meaningful.

Consider canine company
Although it may seem like an unusual idea, create your own company by offering to dog sit for friends who are going out of town. Of course, this will only work if you actually like dogs, and if you're familiar with their dog in particular. You'll be doing both them and yourself an enormous favor. A dog can be great company on a long winter's night

Don't forget the online community.
Visit a chat room or play some online games. Spend some time emailing New Year's greetings.

Make the best of being alone

Make resolutions
Take the opportunity that comes with solitude to reflect on some realistic New Year's resolutions. This is the perfect time to take stock of your goals and create an action plan to attain them. Most resolutions are broken because they're too broad.
Avoid this outcome by breaking yours down into a workable to-do list. If you want to lose 10 pounds and begin to exercise, you need to decide on your routine and check it out with your doctor, schedule your exercise times, throw out the junk food, make a grocery list of healthier foods, and so on.
You've got some solo time on your hands,
so use it to your advantage.

Give Yourself Some Quiet Time
Sometimes the reason we're alone on the holidays is a sad one.
If this is you this season, give yourself the time and the permission to feel sad,
just don't let it become your entire focus. Christmas has a way of turning the world into a fantasy place where everyone is supposed to be happy and everything is wonderful.
Resist the urge to fake a smile all through the month of December. If your heart is broken this year, take the time to remember, to look at old pictures, to mourn.
Just make sure you call a friend afterwards and go for coffee.
Life does go on and Christmas still can be a most wonderful time of the year.

Hard as it may seem sometimes, there are lots of worse positions to be in than on your own, so get into the spirit of the season as best you can and celebrate.
Enjoy your own company.
Do what you take pleasure in but never seem to find time to do.
And most of all, remember that it's just a day.
Make it a happy one, however you choose to spend it.

I wish you a joyous season
of peace and renewal.
Merry Christmas.

Karen

Thursday, November 22, 2007

10 Thanksgiving Quotes to Celebrate The True Meaning of Thanksgiving

by Noel Jameson


Ready for some Thanksgiving quotes? I don't mean the "I'm thankful for my Nintendo Wii" or the "I'm thankful for my new car" quotes that we hear all too often lately. I mean some real Thanksgiving quotes that remind us of what we really have to be thankful for. Here are 10 Thanksgiving quotes to celebrate and ponder.

1. "The Pilgrims made seven times more graves than huts. No Americans have been more impoverished than these who, nevertheless, set aside a day of thanksgiving." ~ H.U. Westermayer

2. "Thanksgiving Day comes, by statute, once a year; to the honest man it comes as frequently as the heart of gratitude will allow." ~ Edward Sandford Martin

3. "There is one day that is ours. There is one day when all we Americans who are not self-made go back to the old home to eat saleratus biscuits and marvel how much nearer to the porch the old pump looks than it used to. Thanksgiving Day is the one day that is purely American." ~ O. Henry

4. "You say, 'If I had a little more, I should be very satisfied.' You make a mistake. If you are not content with what you have, you would not be satisfied if it were doubled." ~ Charles Haddon Spurgeon

5. "As we express our gratitude, we must never forget that the highest appreciation is not to utter words, but to live by them." ~ John Fitzgerald Kennedy

6. "We would worry less if we praised more. Thanksgiving is the enemy of discontent and dissatisfaction." ~ Harry A. Ironside

7. "It must be an odd feeling to be thankful to nobody in particular. Christians in public institutions often see this odd thing happening on Thanksgiving Day. Everyone in the institution seems to be thankful 'in general.' It's very strange. It's a little like being married in general." ~ Cornelius Plantinga, Jr.

8. "It is literally true, as the thankless say, that they have nothing to be thankful for. He who sits by the fire, thankless for the fire, is just as if he had no fire. Nothing is possessed save in appreciation, of which thankfulness is the indispensable ingredient. But a thankful heart hath a continual feast." ~ W. J. Cameron

9. "Gratitude is not only the greatest of virtues, but the parent of all the others." ~ Cicero

10. "Thanksgiving Day is a jewel, to set in the hearts of honest men, but be careful that you do not take the day and leave out the gratitude." ~ E.P. Powell

This Thanksgiving Day, let's remember what we truly have to be thankful for. Let's take a good, hard look around us and realize that while we may not have everything we want, what we want is not always what we need. Let these ten Thanksgiving quotes remind you of the true meaning of this great American holiday as you celebrate with friends and family.



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For more holiday quotes, check out Famous-Quotes-And-Quotations.com, a website that specializes in 'Top 10' lists of quotations in dozens of categories.

Article Source: submityourarticle.com

Friday, November 16, 2007

Phil's Advice For A Happy Holiday Meal



Happy Thanksgiving to all!,
I am going to repost my eating blurb for the newer folk. The rest of you wonderful people remember that it takes a lot of O2 to digest your food, so please do not lie down right after supper as our breathing rate slows down when we sleep and it's harder to get O2 in and CO2 out when we sleep. I hate to break the ladies' hearts, but you should leave the dishes for a few hours, until your meal is digested.

"Like a number of COPD’ers, I have always had a problem when it came to eating. I could never eat too much for two reasons. One, I would become winded and the other, I would always have that feeling of having a tennis ball stuck in my solar plexus if I ate too much. It was not very often that I was able to complete my meal. I would then have an uncomfortable sensation in my chest for hours. It would take 4-6 hours for the unpleasantness in my chest to disappear. I could not eat a meal without stopping and trying to regain my breath or stop eating altogether for that meal.

A couple of months ago I sat down to a supper loaded with turkey, mashed potatoes, carrots, peas, squash, bread dressing and condiments. I ate the whole thing with no SOB and did not have any bloated feeling!

So, what Happened? What Changed? How I breathe while I eat is what has changed. Up till then, I would breathe in as I put some food in my mouth. I would then hold my breath as I chewed the food. Then I would breathe in again; swallow the food and then exhale. In essence, I was inhaling twice for every exhale and “trapping air”. I started to exhale more while I was eating. Now, as I am chewing my food, I very gently exhale for as long as I comfortably can. I never swallow now unless I have finished exhaling. That’s it! That’s the only change! I can now eat without stopping because I am too SOB or too tired to continue. As a bonus for me I gained 1½ pounds, which is significant for a man who is 5’8” tall and weighs 99 pounds.

I hope this helps others who have the same problem. Any feedback would be appreciated, and if it works for others I will add it to my Breathing Distress article."

Phil Cable










I will be joining my husband for his vacation during the week of Thanksgiving.
Happy Holiday Everyone. God Bless You.
Blogging will resume November 26, 2007