Sunday, May 20, 2007

COPD Foundation Research Registry

COPD research is needed to find new therapies and possibly even a cure for COPD. In order to advance COPD research it is very important that the COPD community shows their interest and willingness to participate in research by completing this survey!

The COPD Foundation Research Registry is a confidential database of individuals diagnosed with Chronic Obstructive Pulmonary Disease (COPD). The COPD Foundation is working with National Jewish Medical & Research Center in Denver, Colorado to ensure strictest confidentiality of patient information.

Joining the Registry is easy: to enroll, you simply complete the Registry survey. Once you are enrolled in the Registry, the COPD Foundation Registry will send you invitations to participate in COPD research, including clinical trials for new therapies. For our first study, a very exciting project to find what makes some people more likely to develop COPD, the Registry will also need individuals that have smoked but did not develop COPD. This way they can compare the two groups to find differences.

Under no circumstances will researchers have access to your identifying or contact information, (name, address, phone number, etc.), unless you provide it to them directly by deciding to join their research project.

To complete the survey and join the Registry, you have several choices:
Links directly to the database.
Offline Options:
Have a paper copy sent to you for you to fill out and mail back.
Download a PDF of the form for you to print out, complete and mail.

To Participate in this survey and registry online
Click Here

To request a form be mailed to you
Click Here
To download the PDF of the form
Click Here
If you have questions or need more information,
Please call our COPD Information line
(866) 316-COPD (2673)
To read more on how the registry functions, Click here
For preliminary information on the first major survey and study, Click Here